ANONYMOUS SURVEY

Your experience matters

Survey for adults on the autism spectrum

We want to better understand the everyday experiences of adults on the autism spectrum – both the difficulties and the strategies, the sources of strength and the solutions that really help.

The answers collected will help us create more relevant content, develop projects that support autistic people and talk about the spectrum in a way based on real experiences.

WHY DO WE ASK?

Why was this survey created?

We do not want to base our actions solely on general assumptions. We need the voice of people who are directly affected by these experiences.

1

Better content

The answers will help us create articles, educational materials, and community content that respond to real needs.

2

Practical support

We will use the results to develop projects, tools and materials for autistic adults.

3

Social change

Authentic experiences help to break stereotypes and show the diversity of life across the spectrum.

WHO IS IT FOR?

Who can fill out the survey?

Adults diagnosed

We invite adults with a formal diagnosis of the autism spectrum.

Adults in the process of self-recognition

If you are in the process of being diagnosed or have been recognizing the characteristics of the spectrum for a long time, you can also answer. In the form, mark the right situation.

The survey is about an adult's own experience. It should not be completed on behalf of another person.

NO PRESSURE

How to fill out the survey?

1

Respond On Your Terms

There are no right or wrong answers. Your perspective counts.

2

Take breaks

If the questions cause fatigue, stop and come back later.

3

Do not disclose data

Don't enter names, addresses, or information that identifies you or others.

4

You can skip

If a field is not mandatory, you can leave it unanswered.

PRIVACY

Confidentiality and use of responses

  • The answers are anonymous. You only give a nickname when you want.
  • We do not ask for your name, address, telephone number or other directly identifiable information.
  • The results can be used in analyses, editorial content and projects supporting adults on the spectrum.
  • An excerpt from the answer can only be published anonymously if you indicate the appropriate consent in the form.
  • Quotations can be shortened or edited linguistically without changing their meaning.
  • We do not publish information that could allow us to recognize a specific person or third parties.

Full anonymity also depends on the content you type in open-ended responses. Don't give details that can identify you or another person.

IMPORTANT

If the questions evoke strong emotions

You can stop the survey at any time. Completing it is not more important than your safety.

Imminent threat

In a situation of danger to life or health, call 112.

Support for people in crisis

Round-the-clock Support Centre: 800 70 2222.

Children and adolescents

Helpline: 116 111 and the Children's Helpline of the RPD: 800 12 12 12.

The numbers 116 111 and 800 12 12 12 are intended for children and young people. The survey is addressed to adults, but we leave it as information for people supporting younger relatives.

FORM

Survey: the life of adults on the autism spectrum

Read each question calmly. You don't have to give extensive answers if you don't have the resources to do so.

    SECTION 1: BASIC INFORMATION (optional)

    1. Age

    2. Gender

    3. When were you diagnosed with autism spectrum?

    SECTION 2: CHILDHOOD

    7. Relationships with peers

    8. Did your parents/guardians notice your otherness?

    SECTION 3: PERIOD BEFORE DIAGNOSIS (if the diagnosis was in adulthood)

    11. Did you feel that "something was wrong" before the diagnosis?

    12. What difficulties did you face before the diagnosis?

    SECTION 4: LIFE AFTER DIAGNOSIS

    15. Has the diagnosis changed anything in your life?

    16. Do you have access to support after diagnosis?

    SECTION 5: FINALLY

    21. Permission to quote anonymously on the blog

    I have read Privacy Policy and I agree to the processing of responses for research/editorial purposes.

    Your information will be securely sent to and stored in Google Sheets for the purpose of processing your form submission.

    Once the survey has been sent correctly, a gift will appear below to download. If the form reports an error, check the fields marked as required.

    Have a question about a survey?

    In technical matters or regarding the way of using the answer, you can write to Agnieszka.

    Write a message
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